Monday, October 29, 2012
Seth's 7th
This sweet boy is growing up so fast! I feel like it was only yesterday that Wade was in first grade and now it's Sethie's turn! Such a sensitive and caring boy, I'm so glad he's mine. We celebrated with the family on his day and will be having a party in a few weeks.
What Seth is doing at 7:
1. 1st grade
2. CTR 7
3. Playing soccer
4. Reading
5. Adding and subtracting
6. Running Club
7. Spelling
What Seth loves to do:
1. Ride his bike
2. Play sports
3. Eat pizza
4. Play any video games
5. be silly
6. Watch "Max and Ruby"
7. Sleep in
8. Eat fruit
I love to see the differences in all my kiddos. Wade made me a mom and Seth made me a parent. I have had to learn what works for one kid doesn't work for another because of Seth. He is a great kid full of spunk and fun! I love him very much!
Tuesday, October 23, 2012
Hair is Gone
I probably should not have said anything about my hair, in my last post, because it started falling out the very next day and continued falling out in clumps. Anyone who has delivered a baby can relate. When you are 3-6 months post partum it feels like you might go bald with all the hair loss--this was that, but a hundred times worse and I really did go bald ;).
I didn't know what to expect even though my doctors and their nurses tried to tell me. It is one of those things you can't really understand until you go through it yourself. I did not think losing my hair would be a big deal, but it was. I was an emotional wreck during the days leading up to the shaving of my head. I cried. I cried hard. I grieved my hair. It might sound dramatic, but I grieved the gigantic clumps of my hair that fell out.
I think I felt so emotional about it all because it is another indication that I have brain cancer. Besides the relatively easy surgery and recovery all I have to remind me of the tumor in my brain are the seizures and hair loss. I do not enjoy my daily trips to radiation, but they are pretty harmless and not painful in the slightest. Losing my hair was painful. It literally hurt my head until it came out (think of a really sunburned scalp) and emotionally hurt my heart. A piece of me was falling out. It is really weird to look at a head and see 1/3 of it bald and realize it is MY head.
I really have a whole new awareness and sympathy towards women with breast cancer.
By the time Jess and I went wig shopping on Wednesday, I was ready to let all of my hair go. Wig shopping was fun! In a couple of seconds I went from 1/3 of my hair missing to long luxurious locks that will take 10 years to grow on my own :). I ended up with 3 really fun wigs!
The best part of the wigs is I only have to bring them into the wig shop every 6 weeks for a shampoo. Now that, my friends, is a girl's dream come true!! No hair washing?! YES!
Thursday was it...head shaving day. Matt and the boys decided to shave their heads with me. Seth and Trent were excited to do it, Wade took a little bit of persuasion ($10 bucks from Matt, under the table, that I had no clue about.) I did not want to risk a hair color change from my Rylee girl so she stayed at the length she is at :). Casey bugs is already a baldy so no need to do anything more to him!
Head shaving day was anticipated and I was ready to go. Matt did the honors and it went well.
I am still not used to the way I look bald. It is strange to look at myself in the mirror. I do know there is no way I could have left my longer hair and grow back the bald part--I have lost too much from radiation. I would have had to even it out at some point and cut my long hair REALLY short anyway.
I was really worried I might scare my kids when they saw me bald, but they have not been too affected. Case still gets the same gummy grin every time he looks at me, and the rest of them look at me the same too. Seth told me he "is worried that people will make fun of me." Bless his little heart, I told him "no one will make fun of mommy because they know I shaved my head because I am sick." He seemed satisfied with that response. I love the innocence of a child. While I'm afraid I'm going to scare him, he only cares that others are nice to me.
So, I'm adjusting. One thing that never changes is...life goes on. With or without you and your trials, it will still go on for others. It is a curse and a blessing all in one. Time heals everything. It has been 5 days since my hair has been gone and I feel like I have never had hair. It could be a lot worse--a phrase I am becoming very familiar with.
I love my family and friends. I love the ward and neighborhood I live in. I am very thankful for my doctor's. I am thankful to have brain cancer right now--a time when they make great advances everyday. Mostly, I am grateful for my Father in Heaven who knows me and carries me through each day, prompts others to be there for me when I need it and wants me to be happy. I am happy.
I didn't know what to expect even though my doctors and their nurses tried to tell me. It is one of those things you can't really understand until you go through it yourself. I did not think losing my hair would be a big deal, but it was. I was an emotional wreck during the days leading up to the shaving of my head. I cried. I cried hard. I grieved my hair. It might sound dramatic, but I grieved the gigantic clumps of my hair that fell out.
I think I felt so emotional about it all because it is another indication that I have brain cancer. Besides the relatively easy surgery and recovery all I have to remind me of the tumor in my brain are the seizures and hair loss. I do not enjoy my daily trips to radiation, but they are pretty harmless and not painful in the slightest. Losing my hair was painful. It literally hurt my head until it came out (think of a really sunburned scalp) and emotionally hurt my heart. A piece of me was falling out. It is really weird to look at a head and see 1/3 of it bald and realize it is MY head.
I really have a whole new awareness and sympathy towards women with breast cancer.
By the time Jess and I went wig shopping on Wednesday, I was ready to let all of my hair go. Wig shopping was fun! In a couple of seconds I went from 1/3 of my hair missing to long luxurious locks that will take 10 years to grow on my own :). I ended up with 3 really fun wigs!
The best part of the wigs is I only have to bring them into the wig shop every 6 weeks for a shampoo. Now that, my friends, is a girl's dream come true!! No hair washing?! YES!
Thursday was it...head shaving day. Matt and the boys decided to shave their heads with me. Seth and Trent were excited to do it, Wade took a little bit of persuasion ($10 bucks from Matt, under the table, that I had no clue about.) I did not want to risk a hair color change from my Rylee girl so she stayed at the length she is at :). Casey bugs is already a baldy so no need to do anything more to him!
Head shaving day was anticipated and I was ready to go. Matt did the honors and it went well.
I am still not used to the way I look bald. It is strange to look at myself in the mirror. I do know there is no way I could have left my longer hair and grow back the bald part--I have lost too much from radiation. I would have had to even it out at some point and cut my long hair REALLY short anyway.
I was really worried I might scare my kids when they saw me bald, but they have not been too affected. Case still gets the same gummy grin every time he looks at me, and the rest of them look at me the same too. Seth told me he "is worried that people will make fun of me." Bless his little heart, I told him "no one will make fun of mommy because they know I shaved my head because I am sick." He seemed satisfied with that response. I love the innocence of a child. While I'm afraid I'm going to scare him, he only cares that others are nice to me.
So, I'm adjusting. One thing that never changes is...life goes on. With or without you and your trials, it will still go on for others. It is a curse and a blessing all in one. Time heals everything. It has been 5 days since my hair has been gone and I feel like I have never had hair. It could be a lot worse--a phrase I am becoming very familiar with.
I love my family and friends. I love the ward and neighborhood I live in. I am very thankful for my doctor's. I am thankful to have brain cancer right now--a time when they make great advances everyday. Mostly, I am grateful for my Father in Heaven who knows me and carries me through each day, prompts others to be there for me when I need it and wants me to be happy. I am happy.
Tuesday, October 9, 2012
What I'm Hanging Hope On Today...
"If children have the ability to ignore all the odds and percentages, then maybe we can all learn from them. When you think about it, what other choice is there but to hope? We have two options, medically and emotionally: Give up or Fight Like Hell." --Lance Armstrong
My dear friend, Mandi, sent me the above quote which was an answer to one of my many prayers and exactly what I needed the day she sent it to me. Everyday, sometimes several times a day, I am reminded that there are many people praying, thinking and fighting right alongside me--on both sides. It sends chills down my spine to type these words. I am so blessed.
When all the odds are against me, I am somehow comforted and KNOW it is going to be OKAY. Whether or not things work out the way I want them to is pretty irrelevant, but I am not going to go easy and He knows that--perhaps I won't even "go" at all. This may just be another notch (a big one) on the "trial belt."
Someday, this will all be a memory and we will all be better people from going through this at this time. I know that to be true too.
A few weeks ago, Jess and I went to get lunch at "La Grande Orange" (or happily referred to as "LGO" by the locals.) Such a yummy place--best avocado pizza and salted chocolate chip cookies around. They also have a "store" with the cutest assortment of expensive trinket/random books you'll ever come across that somehow grab your attention and before you know it, you've spent $50 dollars on "books/notepads/calendars" you may never look at again :).
I was given some advice from a fellow cancer survivor and friend :), Lisa, to get a journal where I can write my thoughts and feelings completely unsolicited. I was just going to use a good ole spiral notebook until Jess and I came across a journal at "LGO" called "It's Gonna Be Okay" and every page, inside, is titled "What I'm Hanging Hope On Today" and lets you rate the day with a thumbs up or down. Definitely MUCH more expensive than a spiral notebook, but a lot cuter with a good message.
So, I continue to pray HARD to my Father in Heaven every night, but, as I mentioned, my prayers ARE being answered.
My radiation oncologist is also a wonderful, kind and brilliant man. I meet with him every Wednesday and went last Wednesday armed with many questions--all of which he answered with great care and consideration.
I told him 3-5 years was UNACCEPTABLE for me. There is NO WAY I'm leaving this place that soon! He told me he didn't think so either! He said the internet is a wonderful thing, but once something is out there, it's there forever. The studies that put out the statistics of 3-5 years are OLD. He has been working on a study that has been going since 1994 because the patients they are studying are STAYING ALIVE. They can't end the study.
He also told me the new average age of survival, with my particular case, is 13 years and that is based on a 60 year old male (the average person who gets my tumor.) He told me I have nothing, but to believe I will long out live 13 years. Probably double it! Now 26 years sounds a lot better to me! He also told me to keep the attitude that 3-5 is unacceptable!
Today, I'm hanging hope on 26 years!
I'm also hanging hope on:
A new friend emailed me telling me she is disease free after being diagnosed with the SAME thing as me just 2 years since diagnosis.
I haven't lost my hair yet.
I ran outside tonight.
I gave my baby a bath.
I put piggies in Rylee's hair today per her request
Trent actually listened when I asked him to put a toy away.
My, Sethie, prayed loud enough for me to hear him bless that I get better.
Matt and I told Wade that our family is forever so he never has to worry about us not being together for very long.
They changed the mission age to 18 for boys which means I will most likely be around to see all my boys go and return from their missions.
I could go on and on. Heavenly Father is very aware of me and what I'm going through. I'm going to be okay no matter what happens.
My dear friend, Mandi, sent me the above quote which was an answer to one of my many prayers and exactly what I needed the day she sent it to me. Everyday, sometimes several times a day, I am reminded that there are many people praying, thinking and fighting right alongside me--on both sides. It sends chills down my spine to type these words. I am so blessed.
When all the odds are against me, I am somehow comforted and KNOW it is going to be OKAY. Whether or not things work out the way I want them to is pretty irrelevant, but I am not going to go easy and He knows that--perhaps I won't even "go" at all. This may just be another notch (a big one) on the "trial belt."
Someday, this will all be a memory and we will all be better people from going through this at this time. I know that to be true too.
A few weeks ago, Jess and I went to get lunch at "La Grande Orange" (or happily referred to as "LGO" by the locals.) Such a yummy place--best avocado pizza and salted chocolate chip cookies around. They also have a "store" with the cutest assortment of expensive trinket/random books you'll ever come across that somehow grab your attention and before you know it, you've spent $50 dollars on "books/notepads/calendars" you may never look at again :).
I was given some advice from a fellow cancer survivor and friend :), Lisa, to get a journal where I can write my thoughts and feelings completely unsolicited. I was just going to use a good ole spiral notebook until Jess and I came across a journal at "LGO" called "It's Gonna Be Okay" and every page, inside, is titled "What I'm Hanging Hope On Today" and lets you rate the day with a thumbs up or down. Definitely MUCH more expensive than a spiral notebook, but a lot cuter with a good message.
So, I continue to pray HARD to my Father in Heaven every night, but, as I mentioned, my prayers ARE being answered.
My radiation oncologist is also a wonderful, kind and brilliant man. I meet with him every Wednesday and went last Wednesday armed with many questions--all of which he answered with great care and consideration.
I told him 3-5 years was UNACCEPTABLE for me. There is NO WAY I'm leaving this place that soon! He told me he didn't think so either! He said the internet is a wonderful thing, but once something is out there, it's there forever. The studies that put out the statistics of 3-5 years are OLD. He has been working on a study that has been going since 1994 because the patients they are studying are STAYING ALIVE. They can't end the study.
He also told me the new average age of survival, with my particular case, is 13 years and that is based on a 60 year old male (the average person who gets my tumor.) He told me I have nothing, but to believe I will long out live 13 years. Probably double it! Now 26 years sounds a lot better to me! He also told me to keep the attitude that 3-5 is unacceptable!
Today, I'm hanging hope on 26 years!
I'm also hanging hope on:
A new friend emailed me telling me she is disease free after being diagnosed with the SAME thing as me just 2 years since diagnosis.
I haven't lost my hair yet.
I ran outside tonight.
I gave my baby a bath.
I put piggies in Rylee's hair today per her request
Trent actually listened when I asked him to put a toy away.
My, Sethie, prayed loud enough for me to hear him bless that I get better.
Matt and I told Wade that our family is forever so he never has to worry about us not being together for very long.
They changed the mission age to 18 for boys which means I will most likely be around to see all my boys go and return from their missions.
I could go on and on. Heavenly Father is very aware of me and what I'm going through. I'm going to be okay no matter what happens.
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